Steve Brine MP

for Winchester & Chandler's Ford

12 OCT 2016

Supporting people living with incurable secondary breast cancer

Steve Brine met with Breast Cancer Care in Parliament on Wednesday 12th October to pledge his support for the charity's campaign to ensure people with incurable secondary breast cancer no longer get second-rate care.

A survey of people with incurable breast cancer by Breast Cancer Care revealed just over a fifth (21%) of people who previously had breast cancer are first treated by their GP for another condition. And more than four in 10 (42%) do not feel their overall care is well-managed and well-coordinated. This suggests people living with incurable breast cancer are not getting the care and support they need.

In addition, a report from the charity reveals that, despite it being mandatory since 2013, a fifth (19%) of Hospital Trusts are not collecting any data about the number of people diagnosed with incurable breast cancer, and almost half (47%) are not recording the numbers fully.

Breast Cancer Care believes incomplete data for the number of people with incurable breast cancer is one of the major barriers to urgently needed improvements to poor care.

Ahead of Secondary Breast Cancer Awareness Day, Steve attended Breast Cancer Care's parliamentary event - hosted by Sharon Hodgson MP, co-chair of the All Party Parliamentary Group on Breast Cancer and new Shadow Public Health Minister - to meet women living with incurable breast cancer and call for an end to second-rate care.

He said: "It is so important to show my support for women living with incurable secondary breast cancer. It is absolutely vital that this Breast Cancer Awareness Month people with incurable breast cancer are not forgotten, and it must be made a priority that everyone diagnosed and living with the disease is counted."

Danni Manzi, Head of Policy and Campaigns at Breast Cancer Care, said: "We are extremely grateful to Steve Brine for joining us ahead of Secondary Breast Cancer Awareness Day to show his support for our Secondary. Not second rate. campaign, improving care for incurable secondary breast cancer patients.

"There are still gaps in care for people with incurable breast cancer and consistent data collection is essential to enable crucial services and support to be planned effectively for people living with the disease.

"We are calling on the Government, Public Health England and NHS England to do all they can to ensure everyone with incurable breast cancer gets the best care possible."

 

More information ...

Find out more about the campaign here

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Steve Brine: A record of all Departmental publications reports and data analyses relating to life expectancy in the eight years is not held centrally and to collate all relevant documents would incur disproportionate cost. Public Health England is planning to publish analyses of life expectancy in the future, including in the next Health Profile for England which will be released in September 2018.

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Steve Brine: NHS England has advised that they have, over the last three years, received fewer than 10 Individual Funding Requests applications and therefore there have been fewer than 10 approvals relating to the use of Kuvan. The Secretary of State for Health and Social Care has not had further recent discussions with the manufacturer (BioMarin) since the oral contribution of my Rt. hon. Friend the...

Written Answers — Department of Health and Social Care: NHS: Databases (24 Apr 2018)
Steve Brine: Under the current Pharmaceutical Price Regulation Scheme (PPRS) all payments go back into spending on improving patients’ health and care. Following normal Government accounting rules, there is no separately identified ring-fenced funding stream associated with the PPRS payment. Informal discussions have already begun with industry regarding future medicines pricing arrangements....


Contact Steve Brine in Westminster

Call your MP in his Commons office on 0207 219 7189 or email steve.brine.mp@parliament.uk

Early Day Motions (EDMs)

Steve Brine does not sign EDMs - click here to read why.

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